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Cystinosis is usually treated with cysteamine to reduce build up of cystine levels.

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Before taking up his Consultant post in Gloucestershire, Dr Brown completed his medical training in Liverpool and specialist oncology training at Clatterbridge

details Hepatitis B vaccination history Storage/transport Store at fridge temperature Transport as soon as possible at ambient temperature Turnaround time Up

Dr Jenkins is a committee member of specialist groups set up by the National Institute of Clinical Excellence (NICE) and the National Cancer Research Institute

Please sum yourself up in 3 words or phrases Focused, passionate and diligent

These will appear in a pop-up box (see PENQ screen 2).

If your pain has improved greatly, you will not need a routine follow-up appointment.

This will bring it up to room temperature.

During winter months and outbreaks - up to 3 days.

Some patients find having their arms up uncomfortable, especially if they have arthritis.

Store blood samples at fridge temperature and transport as soon as possible at ambient temperature Turnaround time Sent to the National Reference Centre Up

Light, gentle exercise can gradually be built up over time.

You can also ask for:Details of any future medical follow up appointments.

A follow-up appointment will be arranged if necessary.

What follow up will I receive?

You may have up to 4 of them, 1 in each corner of your mouth.

We suggest that you build up the dose as shown in the table below:

We have tried to make sure that this information is as up to date as possible but please let us know of any amendments needed.

Further follow-up appointments may be necessary to review your progress.